Impact of caregiving experience and Social support on the outcome of Patients with schizophrenia
IMPACT OF CAREGIVING EXPERIENCE AND SOCIAL SUPPORT ON THE OUTCOME OF SCHIZOPHRENIA PATIENTS. Schizophrenia is a chronic mental illness which requiring consistent support from a caretaker in order to provide medication’s supervision, aid in activity of daily living and also for emotional support....
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| Main Author: | |
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| Format: | Thesis |
| Language: | English |
| Published: |
2012
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| Subjects: | |
| Online Access: | http://eprints.usm.my/60992/1/DR%20HARIANI%20BINTI%20ISHAK%20-%20e.pdf |
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| Summary: | IMPACT OF CAREGIVING EXPERIENCE AND SOCIAL SUPPORT ON THE
OUTCOME OF SCHIZOPHRENIA PATIENTS. Schizophrenia is a chronic mental illness which requiring consistent
support from a caretaker in order to provide medication’s supervision, aid in activity
of daily living and also for emotional support. Ironically, in view of the chronic course
of the illness, it also leads to burden and breakdown among the caretakers.
Irrespective of both interrelation factors, the most important issue is the health
outcome of the patients. To assess the association between care giving experience and social
support towards the outcome of Schizophrenia patients. The present study consisted of two parts. The first part involved the
validation of Experience of Care giving Inventory (ECI) Scale for future use in the
local population. The scale was translated into Malay language and a pilot study was
done among 132 caregivers of Schizophrenia patients in the Psychiatry Clinic of
Hospital Universiti Sains Malaysia (HUSM), Kelantan. The data of the pilot study
were analyzed and showed that the Cronbach’s alpha was ranged from 0.6-0.9. In
second part of the study, 60 caregivers and Schizophrenia patients were selected
based on inclusion and exclusion criteria in the Psychiatry Clinic, HUSM. The
participants were selected using non probability random sampling. The data was
collected using the validated ECI scale obtained from Part 1 study, and also with the validated Multidimensional Scale of Perceived Social Support (MSPSS). The
outcomes of the patients were assessed using Positive and Negative Syndrome
Scale (PANSS) and Personal and Social Performance Scale (PSP). The majority of the caregivers were Malays (95%), female (57%), married
(80%) with mean age of 53.4 (SD 13.55). Sixty six percent of them were parents and
almost 80% had more than 10 years of care giving. Whereas, for the schizophrenia
patients, the mean age was 32.4 (SD 9.90), females (58%) and 48% of them had
chronic course of illness with duration of illness more than 10 years. About 70% of
the patients were on oral antipsychotic medication and 20% of them were on
combination of both depot injection and oral antipsychotic medication. Both
caregivers and patients received secondary education level. The mean total score of
PANSS was 64.82, where the negative scale was higher than the positive scale;
19.67 (SD 5.11) and 12.92 (SD 3.72), respectively. Meanwhile the mean total score
of PSP was 63.65 (SD 12.86). The negative care giving experience was higher than
the positive care giving experience with the mean score of 62.45 and 32.45,
respectively. Among the demographic and clinical characteristics of the study
subjects, only educational level was significantly associated with the negative
appraisal of care giving. Result also showed that the negative care giving experience
was significantly associated with the perceived social support among Schizophrenia
patients. Regarding the factors associated with the outcome of the schizophrenia patients, the positive and negative care giving experience were found highly related
to the scores in PANSS and PSP, although no significant finding was observed in the
perceived social support. This study reports educational level of caregivers is associated with
negative care giving experience. This care giving experience impairs social support
toward Schizophrenia patients and indeed worsens the outcome of the patients. |
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